Benefit For Cameron Ladley
This is for my friend Heather, more to follow soon. Note that this disease is one far worse and underfunded for research than Scleroderma, a disease that my wife has a mild form of.
Letter from Heather to me:
We are having a Beef and Beverage Benefit for Cameron Ladley on November 1, 2008. Cameron is 7 years old and attends Norwood School. When he was five years old, he was diagnosed with a very rare condition called Fibrous Dysplasia.
Fibrous Dysplasia is a chronic disorder in which bone expands due to abnormal development of fibrous tissue, often resulting in uneven growth of bones, pain, brittle bones and bone deformity. There is no known cure for Fibrous Dysplasia at this time.
Unfortunately, there are no specialists in the Tri-State area that are able to treat his condition. This benefit will give Cameron a chance to see the specialists that he needs to treat his disorder.
We are looking for contributions from our nearby establishments to help create gift baskets as prizes.
If you can help us out with a donation, it would be greatly appreciated. We will proudly display your business as a sponsor that evening. Please feel free to call me at (610) 586-9258 and I would be more than happy to pick up any donation you may have for us.
I thank you in advance for your consideration and assistance.
Mary Ann Bailey
The Friends of the Ladley Family
Information for the benefit:
Beef and Beer Benefit
Saturday, November 1, 2008
7:00 p.m. – 12:00 a.m.
St. Gabriel’s Hall
233 Mohawk Avenue
Look. C’mon guys! Let’s get the ball rolling here.