Benefit For Cameron Ladley

Benefit For Cameron Ladley

This is for my friend Heather, more to follow soon. Note that this disease is one far worse and underfunded for research than Scleroderma, a disease that my wife has a mild form of.

Letter from Heather to me:

We are having a Beef and Beverage Benefit for Cameron Ladley on November 1, 2008. Cameron is 7 years old and attends Norwood School. When he was five years old, he was diagnosed with a very rare condition called Fibrous Dysplasia.

Fibrous Dysplasia is a chronic disorder in which bone expands due to abnormal development of fibrous tissue, often resulting in uneven growth of bones, pain, brittle bones and bone deformity. There is no known cure for Fibrous Dysplasia at this time.

Unfortunately, there are no specialists in the Tri-State area that are able to treat his condition. This benefit will give Cameron a chance to see the specialists that he needs to treat his disorder.

We are looking for contributions from our nearby establishments to help create gift baskets as prizes.

If you can help us out with a donation, it would be greatly appreciated. We will proudly display your business as a sponsor that evening. Please feel free to call me at (610) 586-9258 and I would be more than happy to pick up any donation you may have for us.

I thank you in advance for your consideration and assistance.

Sincerely yours,

Mary Ann Bailey
The Friends of the Ladley Family

Information for the benefit:

Beef and Beer Benefit

Saturday, November 1, 2008
7:00 p.m. – 12:00 a.m.

St. Gabriel’s Hall
233 Mohawk Avenue
Norwood, Pennsylvania

Tickets: $30

For more information: mailto:stephanie@thetruemeasure.orgor

Face book Announcement for the benefit

Look. C’mon guys! Let’s get the ball rolling here.


Benefit For Moira Shaughnessy – Get Out Your Green!

Via The Haverford Blog

A benefit will be taking place on March 17th, 2007 at Brownie’s 23 East for Moira Shaughnessy, the Executive Director of The Ardmore Initiative. Moria contracted Viral Encephalitis, a condition that causes swelling of the brain. She needs our help. I don’t know her, but I do know about the cost of long term health care and what a financial burden it can be. Below are some links to the story behind what happened to Moria. Remember your donation can make a world of difference.

The Moira Shaughnessy Medical Fund
c/o TD BankNorth
551 W. Lancaster Avenue
Haverford, PA 19041

“Get Out Your Green”: A Community Fundraiser to Benefit Moira Shaughnessy Gets Help from Amazing Musicians!

In a blink of an eye, everything can change

Get Out Your Green in Ardmore

Aftershocks of ‘a lightning strike’